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Unread 01-07-2009, 01:26 PM   #1
MarbleTulip
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Question My Hand & Arm Gets Numb & Tingly. Normal side effect?

I have a weird side effect that my addictions doctor has never heard of, my left hand and arm keep getting numb. tingly and sometimes completely numb. This has started since day 3 on suboxone. Maybe it's not even from the suboxone, but it started when the sub started. And it is really getting bothersome.

Any one else have this? Is the suboxone messing with my circulation?

BTW, I have been on suboxone for 4 weeks at 20mg a day. Just yesterday, I started taking 18mg and I'm trying to get my maintenance dose at 16mg per day.
I was/am an oxycontin, oxycodone, dilaudid, hyrocodone addict. A totally out of hand, ridiculous amount I had been taking everyday for the past year and quite often the years before that.

Last edited by MarbleTulip; 01-07-2009 at 01:27 PM.. Reason: spelling
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Unread 01-08-2009, 04:04 PM   #2
Mike
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Marbletulip,
I would b get that sometimes when sleeping. I have no evidence but I think that sense bupe is a painkiller we don't sense the discomfort of when our limbs are in a position that cuts off our circulation is the numb limb thing happens more often. I noticed when I slept that i wouldn't move around as much when taking bupe and would often wake up in the same position as I fell asleep in. I think that's the same thing.
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Unread 01-14-2009, 12:21 AM   #3
MarbleTulip
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Yeah, but it happens just during the day, when I'm doing nothing. I'll be sitting at my desk at work and all of a sudden my left hand is totally numb. This started when I started on sub 5 weeks ago. It's really starting to freak me out.
BTW, when I went down to 18mg, trying to lower my dose because of side effects, it was BAD. Big mistake. Got strong drug cravings and felt terrible. Back on 20mg a day and better in that department.

Last edited by MarbleTulip; 01-14-2009 at 12:23 AM.. Reason: adding something
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Unread 01-14-2009, 10:32 AM   #4
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Hi MarbleTulip, maybe this is something that's come to the surface since starting Suboxone that may have been masked prior to it?

Think about having it checked out to be on the safe side.

Nancy
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Unread 01-14-2009, 12:01 PM   #5
azande
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Hi, this is probably not it, but i have had carpal tunnel, which i only ever had when on methadone and pregnant. Could it be carpal tunnel?
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Unread 01-14-2009, 10:08 PM   #6
SubCurious
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I occassionally have this problem - but like Mike, it only happens when I'm sleeping. For me, I believe it's due to not moving around much in my sleep, and I lay on my hand/arm too long.

On the rare situation that it's happened during the day - it's usually within a few hours of waking up to a really bad case of a numb hand/arm. And typically only effects the fingers. Nothing major, just a slight numbness, but I suspect it's due to temporary damage caused by the lack of circulation from sleeping on it.

I will note however, I had a strange side effect when I use to take ADD meds, my fingers/toes would get ice cold. It was caused by reduced circulation in the extremities brought on most likely by stress. I imagine this could also cause a numbness as well - though I'm not a Dr and couldn't say for sure.

Good luck to you.
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Unread 01-14-2009, 10:37 PM   #7
Done
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Quote:
Originally Posted by azande View Post
Hi, this is probably not it, but i have had carpal tunnel, which i only ever had when on methadone and pregnant. Could it be carpal tunnel?

If it's getting bothersome....make an appt with a neurologist. I get that a lot....Sometimes it feels like someone is pouring cold water over my hands.... Its a lot worse if i am on the riding lawn mower. I have been tested and that is what the neuro thought it was....actually the test (EMG?) was for my back...because i have alot of numbness in my toes. But they tested all my limbs and i was told that I had CT.......

Let us know what you decide to do.

n

Last edited by Done; 01-14-2009 at 10:41 PM..
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Unread 02-18-2009, 12:19 AM   #8
ironman
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Yes I get this too. Also I get an intense burning sensation above my left knee - llike a pach of skin 3" long, oval shaped, is on fire. Its between tingling and down right pain. its all on the surface though. It may happen 2 or 3 times a week. I can be walking or sitting - doesn't matter. It seems to be more related to when I took my last dose - say within an hour or so. Then it just goes away after an hour or so. Same thing with the numbness. Always my left arm. I've also woke up with serious calf cramps - usually my right leg, Trying to get to the alarm clock when your leg is all cramed up is quite the morning work out ! The cure is to stand one legged on the leg that has the cramp (and get to your sub bottle). I've been on 2mg x 3 a day for a few years now.
This all started in the last year or less. Other side effects have gone. Weird, they seem to roatate - here for 6 months or so then gone only yo be replaced by another.
Hope it doesn't get worse !
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Unread 02-18-2009, 01:38 AM   #9
Done
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Ironman

When i was younger I used to get those got awful "charlie horses" as we called them...and the only way to stop it was to get out of bed, climbing over my husband and putting all my weight on that leg. I take a lot of magnesium, so maybe thats why i have not have one in a long time.

But what i do get is horrible knee pain, its like i have not moved my knees all night, it wakes me up in the middle of the night. I have been lucky to drop my dose of sub to 1mg or less a day and that knee pain has subsided. But I have other back issues, so i guess i am gonna suffer one way or another.

One other question, just out of curiosity is have you ever had any epidural steriod injections into or around your spine????

Good Luck!
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Unread 02-18-2009, 11:55 PM   #10
ironman
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Default Nope

No, can't say I've had the "pleasure" of a spinal. I have to be real brief tonight as one of my kids will be walking in at any moment - so, if I don't respond or drop out mid sentence its only 'cause of this. Be back when I know I can spend some quality time here.
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Unread 02-18-2009, 11:56 PM   #11
ironman
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Oh, yes - we call them "a charlie horse" here too !
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Unread 05-04-2009, 11:49 PM   #12
MarbleTulip
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Default It's Carpel Tunnel

Finally got it tested by a neurologist. And it is severe carpel tunnel. I have to wear a brace and it has gotten much better. I guess it the symptoms and pain were being masked by the drug use.
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Unread 05-07-2009, 12:51 AM   #13
mdan
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Hey Marble, I just posted on the other subject that deals with " sweating ", and in that post, i replied that my buddy and I who are both on sub, BOTH of us experience numbness ONLY in our right hand/forearm area, and our middle fingers get numb and tingly...it was funny that we both said the same exact thing, same spot, same body part....go figure...maybe, both of us also have carpel tunnel that you said your neuologist said that you have ???....take care, Mark....
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Unread 05-07-2009, 09:29 AM   #14
Dangit2009
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Quote:
Originally Posted by MarbleTulip View Post
Finally got it tested by a neurologist. And it is severe carpel tunnel. I have to wear a brace and it has gotten much better. I guess it the symptoms and pain were being masked by the drug use.
I'm glad that you have finally realised what this was and i'm glad that you are on the mend now, but i aws wondering if this is a side effect that happens to everyone or is it only some people that get it??

thanks in Advance
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Unread 05-07-2009, 10:54 AM   #15
MSteinMD
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hand/finger tingling is not a suboxone side effect, and it's good you were evaluated for other explanatory diagnoses
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Unread 05-07-2009, 05:20 PM   #16
maillady
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I also had the same tingling and numbness in my fingers and hand and sometimes my arm or leg..it feels cold and totally numb.. happens about once or twice a week.. not every day but more than once..I also have the jerks or jolts every now and again..wakes me up..whole body jerks but i am used to it now and it doesnt frighten me anymore and its still better than chasing pain pills and eating them like candy and then having withdrawl because my supply was gone..
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Unread 05-10-2009, 11:56 PM   #17
rickyboy
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Default Yes, I have had that symptom

Hi,

I'm new to this group, but I've been on suboxone for 5 years. Hopefully, I can get help as well as help others.

Suboxone been a great help, but, in my case, I think I need to move on, albeit very carefully, mostly due to side-effects. One side-effect was numbness.

YES. I have had this symptom, but mostly when I was on a higher dose than I needed to be on and I was not getting as much exercise as I should have.

My doctor said the same, thing, "No. That's not listed as a common side-effect" which sent me scattering for the root cause. Well... I'm glad I've read that other's have experienced that numbness thing.

In my case, it seemed to happen after I fell asleep and I'd wake up at like 3 or 4 AM and I couldn't feel my leg or arm. Then, it would slowly come back.

Important: This has pretty much gone away after reducing the dose by a significant amount.

There's a great benefit to reducing the dosage as much as possible. I still need to reduce and eventually maybe get off it completely. After 5 years, I'm sick of having side-effects. Sweating, tiredness, lack of energy, lack of focus, etc. Don't get me wrong, in the beginning, it was great and I loved the stability of being on suboxone, but I think there are definitely side-effects and these should not be downplayed by anyone.

Best of luck,
Rick
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Unread 05-12-2009, 06:19 AM   #18
jennp3
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It is most definitely carpal tunnel. I used to be a nail tech until I got CT in both hands. Those are the exact symptoms, nothing to do with pain meds or Suboxone. I had a carpal tunnel release operation on my right hand and it fixed the problem. My left was not bad enough to need surgery. They do it with a local anesthesia and recovery is quick, maybe 2-4 days with a little pain. Go see an orthopedic hand specialist and they will know just by examining you, or you can have the very unpleasant EMG test. Good luck!
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Unread 05-12-2009, 07:37 AM   #19
TIM
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I have a theory abut the numbness (with absolutely nothing to back it up with). IMO- Normally when we sleep or sit on an arm or leg too long our body senses discomfort and we automatically adjust or move. With bupe (or other opioids) we may be more comfortable and not sense this resulting in more episodes of numbness. This would also explain why these symptoms appear to be dose related…just a guess.
Tim
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Unread 05-13-2009, 10:27 AM   #20
comingbacktolife
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I too have experienced this same symptom, numbness in my left arm and fingers, but it seemed to have subsided as of late. I have been on suboxone for one year now, and my focus is turning to the side effects suboxone may or may not be causing. I know many are quick to blame it on the suboxone, but after reading so many similar things occurring to those on suboxone it just seems a bit odd that so many are so fast to dismiss these similarities as a non-side effect. There are no long term studies of the effects of suboxone, or any form of buprenorphine, and I feel that it doesn't hurt to gather these side effects that suboxone users are experiencing so that it possibly can, in turn, be used as a long term study.

Yes, I am new to this forum, having just joined yesterday, but am in no way new to suboxone, or bupe in any way. The first time I ever detoxed was back in 1999 or 2000, and it was with the buprenex injections. I had a ridiculously bad h habit and was very frightened of detoxing, so I made sure it was with the bupe.

Please, don't judge, fore I am so very grateful suboxone is available to all of us now. This at one time seemed impossible, and I honestly thought I would forever have to use h because I feel like the way my brain is configured, there is just something in it that requires the need for some type of opiate or opiate like substance. Proper usage of suboxone has changed this view for me.
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Unread 05-20-2009, 02:55 PM   #21
ironman
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No disrespect intended MD but I think the more folks are prescribed Sub long term the list of known side effects will be increasing. I'm one of those (knock on wood/fingers crossed) "never had a sick day' types. Never a reaction to any med., never get headaches - never need to go to a doctor other than for injuries and flu vaccines. Before I go any further let me say that I know not getting regular physicals is not a smart idea. Having said that though when I do have unusual things occur now I'm pretty dang sure it related to Sub. Nothing major but still a pretty long list of unusual symptoms. I do go by 'intuition' - not very scientific I know but I do know when my body is 'telling me something' and I'm usually 100% correct. I consider my 'gut feelings' on most things to be dead on balls accurate - something I've learned about myself and have depended on now that I've been on this planet over 50 years. When I get one of these odd physical 'happenings' I'm never surprised to come onto this forum and find others stating they have experienced the exact same thing - worded as if I wrote it myself. I have zero doubt theres quite a list that should be added to 'know side effects', So far these have been mild, not very troubling - just unusual. There are so many I forget some of them because they have been transitory, some related to higher doses, some experienced when lowering dose. In all I'd say most clear up at lower dose. this numbness/tingling
report is something that started when I began Sub. I know that means nothing. My hair line started receding and I got a few more faciial wrinkles too- doesn't mean it's related to my beging Sub therapy. Although I'm not a medical doctor I've worked in the health field for 30+ years - working very closly with doctors and nurses on a daily basis. You do learn some things over the years.
I know that just because I log on here and find a 1/2 dozen others out of many thousands on Sub
post about numbness/tingling etc., is in no way conclusive evidence that these are due to taking Sub. The side effects are so odd though and the sudden onset without other symptoms ie., no recent injury, fever, infection, history of nerve damage, kideny problems - not even a hint of feeling otherwise ill and then the sudden disappearance of what was a day to day symptom just leaves one with the feeling that they symptom is related to Sub. Typically i get very nervous and automatically dlay the next dose and begin reducing when a new one presents itself. 'Coincidentally' either it goes away completely or subsides to an insignificant level. *All the while I'm typing this, I'm preoccupied with trying to remember the word for ones own personal experience and using it to draw a conclusion about an entire 'whatever'. Dang, I just can not remember the term ! Short term memory loss has been another effect I feel is Sub related. Even though I'm getting up in the years and might expect to experience this with aging, the experince is more than forgetting where I left my car keys. Entire experiences 'disappear' from memory unless i sit down and really try to 'bring them back' - it alters my sense of time passing. At times I'll look at the clock and wonder where the day went - I mean really wonder !! I have to re trace everything I did during the day some things seeming like a distant foggy memory - entire blocks of time or an entire task such as changing the oil in my car. Once I re trace my day so to speak, the time then becomes 'accounted for' and I feel more relaxed. My experience has been, yet again, that this is 'dose rel;ated' - higher the dose - the more pronounced the feeling/experience. One of the benefits for me at least that Sub provides is my abiltiy now to 'focus' and experience life 'in the moment' - rather than worry, fill my head with regrets or worries about the future. I think this is why I experience this type of 'memory loss'. I move from task to task. As each one is done, I move to the next w/o spending anytime reflecting on what I just finished. A good example of this has been my phone conversations with others. I have them, finish them and forget 'em ! There was a time I'd spend time while into the next task, rethinking everything that was said during the conversation as I was working on the newer task at hand. This is VERY hard to describe BTW, I'm doing my best LOL !!
Anyhow, I don't mean to go on and on about me here - I do it so I have a dated record I can return to for later reference and with the hope that maybe it wil help another pin point something they maybe experiencning likewise and have been wondering about. I'm rushing nw because this has taken more time to type then I expected and I need to move along. I've at least touched on a few points - maybe others will read and add or maybe its just me.
**If anyone in the medical community happens to be reading this, know that my intent here is NOT to complain about the side effects of Sub. They have been minimal and manageable for me.
Also know that this med. has been a true life saver for me - I can not imagine going back to life as it was withouut this medication and, if I have any fear or concerns, its that due to reports like what was aied on FOX , might cause changes or re thinking of the Govt approved program that saved my life and continues to assist me in having a life wotrh living. Make no mistake about this. Thank you.

My apologizes to all, once again, for the horrendous grammer. This is the best I can do when rushed LOL !! I shoulda' learned how to type ....
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Unread 05-20-2009, 03:11 PM   #22
ironman
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BTW, another 'side effect' has been that my kids dad is more dependable, predictable and warm.
I think they would say 'thank you' to the entities involved that has made my recovery possible and day to day life with me greatly improved !! Its gone unsaid but i can see it in their faces - they approve of the 'new me'. I very nearly lost them and life would have been not worth living if I had. Sounds melodramatic maybe but it is the truth 100%.
"Moma please don't take my 'Kodachrome' away..."
Sung to the tune of Paul Simons....well, you get the idea.
Hmmmm, what rhymes with 'Kodachrome' sorta ???? LOL !!
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Unread 05-29-2009, 10:34 AM   #23
fresh2009
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I too am experiencing the numb/tingle, cold hands. It woke me from my sleep last night. I am only on 4mg. Sub. It has happened the past two nights and it has coincided with doing extra physical labor. I don't know if my arms were strained from extra work - or maybe I just slept extra hard from being tired.
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Unread 06-05-2009, 04:00 PM   #24
amanda1604
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this totally happens to me like completely numb and tingly in my left arm and hand I have to wake it up every morning.
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Unread 06-19-2009, 04:50 PM   #25
chrissy
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i am new to posting, but i have been reading everyones threads for awhile. I have had numbness, tingling and pain in my hands and arms for years now and mostly the oxy covered it up, for a bit. I went in for testing and found it was my nerves. I had more tests and they had shown that my body wasnt able to absorb b-12, which is major in helping your nerves. After 6 months of b-12 shots every other week and then going to them once a month i noticed an improvement in the pain and numbness and tingling. After i switched docs, and went on the suboxone in November 2008 i failed to mention the b-12 problem to my new doc, so i never got the b-12 prescription to give myself the shots i needed. I was so focused on getting off the oxy and scared of the pain i was going to have from my fibromyalgia once i was off the oxy, i just forgot it. Then about a month ago i noticed i was having the pain and numbness and tingling again in my hands and arms, so I am going back to the shots. Hopefully once my b-12 levels are back up to normal i will not have as much pain in my hands and arms. But i had all the carpal tunnel tests done and was told thats what it was, but it wasnt the whole problem. Plus with the fibromyalgia it was dismissed for so long as just pain from that illness. So just make sure you have more than just a carpal tunnel test run, just to be sure, because so much damage can be caused by low b-12 levels.
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Unread 06-19-2009, 09:37 PM   #26
toboat777
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Hello all

Yes same for me my arms are numb every morning i was blaming my
work over the years as being in construction we do a lot of repetitive
motions but now I'm not so sure i have been taking vitamin b now for a month i feel it may be getting a little better is this possible if you know
if that is possible i would apreciate a response thank you.

Tony.
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Unread 06-24-2009, 10:30 PM   #27
chrissy
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hi toboat777 and all,

yes it is possible, a vitamin deficiency can be a cause for nerve and muscle pain and cramping or the tingling and numbness. I have been taking b-12 injections to endure it is absorbed better. You can have your doc run tests to see if you are deficient in any vitamins and see if you need a multivitamin or something more. Goodluck, just remember to have your doc verify which supplements/vitamins you need and that they will not effect the suboxone absorbtion.

chrissy
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