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Unread 08-31-2008, 10:01 PM   #51
azg2b
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Hey Tommy,

I can relate....I have the "jerks", or spasms, as well. I don't think they're quite as strong as yours are, but they are certainly there. I went to a Neurologist just to rule out other possiblities (thyroid), and once my test results came back negative, I concluded it had to be part Subutex and part anxiety. Although I have no real "proof" of that. JMO.

I did notice that once I resolved some major stressors, and dropped down 2mgs, the spasms became less pronounced and not as frequent.

I've almost grown acustom to them now where they don't even bother me anymore. I'm sure you'de feel better, like you said, talking to your doctor about it. For me, once I ruled out some other health concerns, I felt better and not quite so anxious.

I hope you start to feel better soon, and good luck!

j
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Unread 09-01-2008, 08:40 AM   #52
So.Cal.
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Thanks J,

yea, i am gonna see a doc,,i dont think its anything to do with stress,,i do have everyday minor jerks and the feeling of just wanting to let go and jerk all over the place,,,but its the worst when i wake up at night.,,If i try to get a drink of water the best way to describe what i feel is comparing my self to a robot and having the power turned off and on!,Like i loose hold onto anything or if i try to walk to the bathroom i almost fall (like a puppet on a string )a few times before i get there.
scary as hell.
TT
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Unread 09-01-2008, 01:55 PM   #53
rag-doll
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I have had what you all call the "jerks", off and on now for awhile. I always chalked it up to being a withdrawal symptom when I was kicking Xanax and Valium. Last night, I jerked so hard, I hit myself right in the face!!! Or, I feel as though I'm falling, but then "jerk" myself awake! weird, crazy stuff, but it's still so much better than waking up everyday, only to wonder where I'll get my next fix!
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Unread 09-01-2008, 02:44 PM   #54
azg2b
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Tommy,

I'd be real interested to know how it goes once you see your doctor...I imagine it is pretty scary for you with the symptoms you're decribing. Hope it goes well and please, if you don't mind, keep us informed.

j
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Unread 09-01-2008, 07:40 PM   #55
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Quote:
yea, i am gonna see a doc,,i dont think its anything to do with stress,,i do have everyday minor jerks and the feeling of just wanting to let go and jerk all over the place,,,but its the worst when i wake up at night.,,If i try to get a drink of water the best way to describe what i feel is comparing my self to a robot and having the power turned off and on!,Like i loose hold onto anything or if i try to walk to the bathroom i almost fall (like a puppet on a string )a few times before i get there.
scary as hell.
TT
All though I have only experience minimal jerks in the past, I have been through stages of thinking like that. Just picking up something, like a robot, the brain telling the arm to grab the cup...etc. While it's very possible you are having some serious physical jerks and some types of werid reactions. It's also possible, I experience thoughts like the one's you explained, or a change of perception, which is classified as depersonalization disorder. You may have heard of it.

Anyway, I might be completely wrong....just a thought. I'm sure your doctor will definitely be of some help. Hopefully it's just some type of physical jerk, depersonalization can become a struggle. Good luck!
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Unread 09-02-2008, 08:36 AM   #56
So.Cal.
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Ha,,to make things simple "im probaly JUST A JERK! LOL,

TT

but ragdoll,,you bring up another experience i havent felt in a long time ,,that falling thing is really scary too,,for me it would feel something like my brain wasnt connected to anything and was falling out th eback of my head,,and i would be awake but couldnt move!,and once i did get to where i could move i would have to get up or i would go right back to that feeling again,,,,really wierd but i dont have that happen anymore.

Last edited by So.Cal.; 09-02-2008 at 08:40 AM..
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Unread 02-19-2009, 12:44 AM   #57
ironman
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It maybe that this manifests itself differently in different people. I have the "drop-sy" thing. Its like I forget I'm holding on to something a second after I pick it up - then, boom, its on the floor. I also have facial "tics", teeth grinding etc. I related to your "wanting to just let go and jerk all over the place" as I have, besides the teeth grinding, the uncontrolable eye blinking - weven worse, I have to close them really tight to relieve the "tension" (?) . At times I did just "let go" and squeezed them closed (eyelids) as hard as I could - and it still didn't relieve that "feeling". So, what I'm trying to say is, I think we are both dealing with a muscle tension kinda thing - with me, its my facial muscles - you- your limbs (?). I also have a general over all anxiety.
I pace, can't make up my mind what I want to do. I'll get up from my PC, go to the kitcen to look for a snack, change my mind and walk back to my PC and then wonder why I didn't see through getting a snack - back to the kitchen ! I also have muscle pain/weakness - not always in the same place (except one - above my pit/elbow,at the bottom of bicep) and also cramping (charlie horse) in calfs. All muscle related.
Hmmmmmm....
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Unread 02-19-2009, 10:55 AM   #58
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Hi all

I am glad I am finally able to read some of the stuff you are all writing. We had 75 knot winds here and our dish blew of the building. My worst effect that I have noted since some is the pain in my calves and feet and cramps at night. I have always felt that I kept myself so tensioned up during the day that when i finally lay down and relax all that tension has to go somewhere. Maybe just alot of BS, but when I am away from the stress of day to day for a few days it goes away. I also feel I was masking alot of things with the Mdone and now I am feeling all of it. Kinda of like 30 years of covering my ugly face and then making the world look at it in one day. You all take care.

Brett
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Unread 05-16-2009, 12:59 AM   #59
slave2sub
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The following are side effects I've developed in being on Suboxone maintenance (8mg day) for over 2 years now....


Side effects that happenned right off: PROFUSE, INTERMITTENT SWEATING.... CONSTIPATION....DROWSINESS....

Side effects within a few months: RAPID TOOTH DECAY (now, 2 years later I have had over $8,000 worth of dental work due to Sub). And I have NEVER had problems with my teeth prior to getting on Sub.

Side effects after a year: VISION IMPAIRMENT, occasional intense numbness in three fingers on each hand (starting with thumb)..usually in middle of night. Numbness doesnt go away with exercising hands/arms... but only goes away on its own after awhile

NOTE: I have NEVER had vision problems nor worn glasses or EVER had numbness issues. Just a year or so ago, I had perfect 20/20 vision which has seriously declined with Sub maintenance. Now I wear prescription glasses. Which only help with my close-up vision. Distant objects are now a blur.

Oh, and ironically I now awaken more tired than before I went to bed....EVERY SINGLE NIGHT. THIS particular symptom started as mild fatigue which graduated to EXTREME FATIGUE. When I first STARTED Sub, it was GREAT. I had all kinds of energy and was depression-free for several MONTHS. But that soon ended. Now the only reason I am still on it is for maintenance because I so desperately fear horrid WITHDRAWALS!!!!! Which is the reason I went on it to BEGIN with (to AVOID Hydrocodone withdrawal). But theres ALWAYS a trade-off or "pay-day" somewhere down the line, isnt there?!

Oh, and I'm STILL experiencing every single side effect (2 years LATER) that I mentioned above. The extreme fatigue and CHRONIC SWEATING being the WORST of it. I forgot to mention ankles and fingers swelling. THAT side effect started about a YEAR into Suboxone.

Sometimes I wonder if I should just start back on Hydrocodone!!!!! At least IT didnt cause most the side effects as Sub!!!! And the O-N-L-Y reason I'm still on Sub and not IT is because Hydro (thanks to the freakin' "Ryan Haight Act" isnt possible to get online anymore! And NOOOOO doctor around HERE would script as much as one could originally get online!!!! Oh, and which is PROBABLY the reason that a LOT of us here are on Sub NOW!!!!!!!
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Unread 05-16-2009, 02:39 PM   #60
OhioMike
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For myself, my Sub dose reduced as I progressed in recovery and as a result, all of the side effects subsided. Once in a great while will I experience one and then it is very mild.

Mike
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Unread 05-16-2009, 06:32 PM   #61
calico_tabbycat
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Quote:
Originally Posted by Dobeygirl View Post
Hi kyjobr.

I have a question for you, since you tapered off, if you don't mind... I am STILL nodding off even on 3mg - now that you are off sub, has the extreme tiredness and drowsiness totally gone away? I would so appreciate an answer because I have been so worried there is some horrible disease I have because most people said Sub made them stay "awake" more.

My constant nodding off is one of the reasons I need to have a CAT scan of my head - if I knew a few others on sub had the exact same thing I would probably put it off for now.

I remember I saw the question once about "nodding off" but most answers were "it keeps me awake" except for a few who said they certainly had increased sleepiness/drowsiness. I would love to know how low you got before it went away if it did at all!!

thank you!!

Edited to say: I am also going to start a new thread on this so it doesn't get 'lost.' Can you please answer the thread? Thanks so much!

I too get extreme sedation with suboxone. I've been sleeping 14 hours/night since I started taking it 9/10 months ago, and my psych thinks I have hypersomnia! I didn't have this problem before the sub, and I'm only on 4-5mgs per day. I talked to a pain management specialists/anesthesiologist and he says 10% of the population has this side effect (I also have extreme weight gain, about 25 lbs immediatly after I started taking it, and extreme dysphoria) and I'm just extremely sensitive to the medication. I have to take 40mg of methyphenidate per day to stay awake! It's a constant up and down.

Anyhow, I've been tapering off, I'm down to 2 1/2, and I'm scared of the withdrawals, but more scared of being fat, depressed, and sleepy all the time. I went on it for chronic pain. I should have stayed on t3's. going from t3's to buprenorphine is like trying to shoot a fly with a shotgun! I wouldn't recommend it to anyone.

Last edited by calico_tabbycat; 05-16-2009 at 06:43 PM.. Reason: added length of time on sub.
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Unread 05-17-2009, 10:31 AM   #62
Sub-Zero
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Default Have you tried methadone?

Quote:
Originally Posted by slave2sub View Post
Oh, and I'm STILL experiencing every single side effect (2 years LATER) that I mentioned above. The extreme fatigue and CHRONIC SWEATING being the WORST of it. I forgot to mention ankles and fingers swelling. THAT side effect started about a YEAR into Suboxone.

Sometimes I wonder if I should just start back on Hydrocodone!!!!! At least IT didnt cause most the side effects as Sub!!!! And the O-N-L-Y reason I'm still on Sub and not IT is because Hydro (thanks to the freakin' "Ryan Haight Act" isnt possible to get online anymore! And NOOOOO doctor around HERE would script as much as one could originally get online!!!! Oh, and which is PROBABLY the reason that a LOT of us here are on Sub NOW!!!!!!!
Maybe methadone would be a better medication for you. It has different side effects, but since most people don't get the side effects from sub like you do, maybe you won't get the side effects from methadone??? With methadone you can keep raising your dose to keep getting that euphoric feeling you want. I had a few friends that still wanted to get high, so they didn't like sub because of the blocking, but since methadone is a full agonist it doesn't block other full agonists like sub. Methadone will probably be a lot cheaper too. I was lucky and didn't have any side effects from sun accept constipation and decreased sex drive, both got bacxk to normal when I tapered off last year.
Sub
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Unread 05-17-2009, 01:04 PM   #63
OhioMike
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Good suggestion Sub Zero!

Mike
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Unread 05-19-2009, 03:20 AM   #64
ironman
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Quote:
Originally Posted by Alaska View Post
Hi all

I am glad I am finally able to read some of the stuff you are all writing. We had 75 knot winds here and our dish blew of the building. My worst effect that I have noted since some is the pain in my calves and feet and cramps at night. I have always felt that I kept myself so tensioned up during the day that when i finally lay down and relax all that tension has to go somewhere. Maybe just alot of BS, but when I am away from the stress of day to day for a few days it goes away. I also feel I was masking alot of things with the Mdone and now I am feeling all of it. Kinda of like 30 years of covering my ugly face and then making the world look at it in one day. You all take care.

Brett
I just took a 'road trip' - a 5 hour drive. I got muscle cramps in both calf's - thankfully not at the same time ! A good remedy I always use is to stand up and stand on the one leg thats experiencing the cramp. Not very practicle though in a car ! I had to push my foot under the peddles, up against the fire wall to get the same effect. Thank you 'cruise control' LOL !! If they happened in both legs simultanously I would've had a real problem. This has happend during the night while in bed. Not fun. I onder though if I didn't bring this on by worrying about it. When I thought of being in a car, alone, ditting in the same position for 5 hours, I did start to worry about it before leaving. 2 hours down the road and the 1st one hit. I only share this so you can think out what to do in case the same happens to one of you. This wasn't the 1st time for me. The first time I was totally unprepared for it and it really scared the hell out of me. I was able to pull over though and get out of the car for awhile though as I was only driving through town. This last bout happened on a super highway during a driving rain/wind storm. I was more afraid of pulling over.
I wonder about the source of these cramps. It seems like a dfinite Sub side effect now as so many people have experienced them. Tension ? Over use of the muscles ? (I also grind my teeth to the point of painful jaw) Mineral/vitamin deficiency ?
Hmmmmmm......
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Unread 06-02-2009, 11:28 AM   #65
ironman
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About the 'vision' problems - when your eyes are 'pinned' all the time, you're not going to see as well in most lighting conditions (?) I know that isn't worded well but I'm in a hurry here - ya get my drift though....
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Unread 07-09-2009, 01:11 PM   #66
free2beme
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kankles,that is swollen feet and ankles,and constipation,I fixed that with 5 fiber pills a day.that seems to do the trick.But my doctor has never heard of any problems with the kankles.
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Unread 07-16-2009, 06:02 PM   #67
shiela
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Weird side effect, because the tabs are used sublingually, under the tongue, I often got really bad sores under my tongue. These sores hurt like a canker sore, maybe the med caused these canker sores and I am sure that the stress I was under didn't help much. Has anyone else experienced this problem? The sores went away when I stopped the med.
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Unread 10-29-2009, 09:06 AM   #68
lacyalbrent198
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doeby gurl it is for a 100 percent fact noddin off saboxon dont u notice after u take it making u tired everybody is way diffrent some take 20mg and need more some take 3 8 mg and and cant open their eyes it is not a brain thing its saboxon i could be wrong but im pretty sure it is that and i did the same thing i was on 16mg and i did have energy but then it would kick me in the ass hard id be so tired it was horrible just keep goin down it will take acouple days for u to notice some times a week so dont get mad or think it not workin if ur on 3mg and go to 2 or 3haf u wont notice rit away and pluse it probly will help and if not u can always go up good luck
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